Cord Blood Banking | Genetic Diseases (2024)

The birth of a baby holds with it a miracle most parents aren’t aware of — the ability to save a life.

A newborn’s cord blood stem cells have the potential to provide a lifesaving treatment for others.

Cord blood is obtained from the umbilical cord only after the birth of a healthy baby. Cord blood is rich in blood-forming cells that can be used in transplants for patients with leukemia, lymphoma, and many other life-threatening diseases. It can be especially useful for transplant patients from ethnically diverse backgrounds who often have difficulty finding a transplant match. Since cord blood is stored frozen it is available for use as soon as a match is identified. Your baby’s donated cord blood stem cells may increase the likelihood of someone benefiting from a cord blood stem cell transplant. Additional information regarding cord blood banking is available through the Parents Guide to Cord Blood Foundation.

Parents Guide to Cord Blood Banking (English)
Parents Guide to Cord Blood Banking (Spanish)

There are two types of banks that store cord blood – public and private. Public banks store donated cord blood for potential use by transplant patients. The blood is listed in a registry by its tissue type, and the donor remains anonymous. If you give your child’s cord blood to a public bank, your donation may save a life, but you have no guarantee that you can retrieve the blood for use by your family later.

Private banks, also known as Family Banks, store cord blood with a link to the identity of the donor, so the family may retrieve it later if it is needed. The parents have custody of the cord blood until the child is an adult. The cord blood might someday be needed by the donor baby but there is no evidence that an autologous (self) cord blood transplant would be preferred to treat bone morrow failure, leukemia, hemoglobinopathies (such as sickle cell disease) and immunodeficiencies, because most conditions that may be helped by cord blood stem cells are already present in the cord blood (for example, pre-leukemic changes). The baby’s cord blood could be used by a relative who is a close enough match to receive a transplant from the donor; typically a sibling. There is a fee to collect the cord blood at birth, process and store the cord blood and an annual fee to store the cord blood. See a list of private banks.

For more information on the St. Louis Cord Blood Bank, call 314-268-2787 or 888-453-2673 or visit their web site http://slcbb.org/.

If you are interested in donating cord blood, contact the National Marrow Donor Program® (NMDP) Network cord blood banks listed below offer cord blood collection kits to a limited number of women who are delivering at a hospital that does not actively collect cord blood from public cord blood banks. Women must meet eligibility criteria and their obstetrician or midwife must also agree to do the collection.

Contact Cord For Life before your 30th week of pregnancy for more information and tell them that you would like to donate to the Be The Match Registry®.

Cord for Life
270 Northlake Blvd.
Suite 1012
Altamonte Springs, FL 32701
1 (800) 869-8608

Contact

Bureau of Genetics and Healthy Childhood
Missouri Department of Health and Senior Services
PO Box 570
Jefferson City, MO 65102-0570

Telephone: 573-751-6266
or (toll-free) 800-877-6246
Fax: 573-751-6185
Email: info@health.mo.gov

Cord Blood Banking | Genetic Diseases (2024)

FAQs

What diseases are associated with cord blood banking? ›

Cord blood is rich in blood-forming cells that can be used in transplants for patients with leukemia, lymphoma, and many other life-threatening diseases. It can be especially useful for transplant patients from ethnically diverse backgrounds who often have difficulty finding a transplant match.

Do doctors recommend cord blood banking? ›

The American College of Obstetricians and Gynecologists and the American Academy of Pediatrics don't recommend routine cord blood storage. The groups say private banks should be used only when there's a sibling with a medical condition who could benefit from the stem cells.

What are the chances of needing cord blood? ›

The chance that a child would be able to use his or her own cord blood is extremely small: from a 1:400 to a 1:200,000 chance over the child's lifetime.

Is it worth saving umbilical cord blood? ›

Doctors do not recommend that you bank cord blood on the slight chance that your baby will need stem cells someday. If your baby were to need stem cells, he or she would probably need stem cells from someone else rather than his or her own stem cells.

Does insurance help with cord blood banking? ›

Some insurance providers will cover the cost of cord blood banking when collection is medically necessary. For example, depending on the provider, families with a history of leukemia or other blood disorders may be eligible for total or partial coverage of the costs of cord blood collection and storage.

How long can you keep cord blood banking? ›

Choices for storing cord blood

Some experts believe it can be stored for 21 years or more. You have two choices for storing cord blood: public storage or private storage. These storage spaces are referred to as "banks." The facility you choose should be accredited through the American Association of Blood Banks.

Is it better to donate or keep cord blood? ›

Typically the umbilical cord and placenta are discarded after your baby is born—unless you decide otherwise. You can choose to have your baby's cord blood collected and donated to a public cord blood bank, stored in a family (private) cord blood bank, or saved for a biological sibling who has a diagnosed medical need.

Why is cord blood so valuable? ›

How does umbilical cord blood help save lives? Umbilical cord blood contains blood-forming stem cells, which can renew themselves and differentiate into other types of cells. Stem cells are used in transplants for patients with cancers like leukemia and lymphoma.

Can siblings use each other's cord blood? ›

Cord blood banking is as much for the baby as it is for existing and future additions to the family. This is because there is not only an opportunity for the baby to use his or her own cord blood but also an increased chance it can be used by a brother, sister or other immediate family member.

What are the cons of cord blood donation? ›

Some disadvantages of cord blood banking include the following: Cord blood does not contain many stem cells, which means that adults needing a transplant will require cord blood stem cells from multiple donors. People have to pay a fee for storing cord blood in a private bank, which could prove costly.

What do hospitals do with placenta after birth? ›

Do Hospitals Keep Placentas? Hospitals treat placentas as medical waste or biohazard material. The newborn placenta is placed in a biohazard bag for storage. Some hospitals keep the placenta for a period of time in case the need arises to send it to pathology for further analysis.

What do hospitals do with umbilical cord blood? ›

After your baby is born, the umbilical cord and placenta are usually thrown away. Because you are choosing to donate, the blood left in the umbilical cord and placenta will be collected and tested. Cord blood that meets standards for transplant will be stored at the public cord blood bank until needed by a patient.

What are the dangers of umbilical cord blood? ›

There are no risks to your baby, as cord blood collection does not start until after the umbilical cord has been clamped and cut. The risks to the mother are due to having a blood sample collected and may include discomfort, bruising and, rarely, infection at the site.

Why would someone bank cord blood? ›

Cord blood banking can help someone, including someone in your immediate family, in need of stem cells. Stem cells can be found in your baby's cord blood. Stem cells from cord blood have been shown to help treat many life-threatening conditions like cancer.

What are the cons of cord blood banking? ›

A disadvantage of cord blood is that it does not contain many stem cells. Units from several donors can be combined to increase the number of stem cells if a transplant is needed for an adult. What is an autologous transplant? In an autologous transplant, the cord blood collected at birth is used by that same child.

What diseases can be cured with umbilical cord? ›

Diseases Treated with Cord Blood
  • Malignancies. Leukemia, Acute myeloid leukemia (AML), Lymphoma, Multiple Myeloma, Hodgkin's disease, Retinoblastoma, Solid tumors.
  • Blood Disorders. Sickle cell anemia, Thalassemia Aplastic anemia, Fanconi anemia, Diamond-Blackfan anemia, Amegakaryocytosis Histiocytosis.
  • Other Diseases.

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